I have a confession. I forgot about an appointment for a CT scan on Monday. I just went about my business and realized it only when I had my first cell call of the day and noticed the notification.
So I go to Florida Hospital on Tuesday afternoon for the scan. No biggie. I've done these things every four months for nearly two years, and even more frequently prior to my surgery. By now I should glow in the dark.
The scan will allow my doctors to see if anything is growing inside of me. Well, let me rephrase that. The doctors will see if anything bad is growing inside. I don't think so; there's no blockage that I can tell.
So I feel pretty good going into this scan. I see Dr. Z in mid-April and I feel certain I'll have a relatively clean bill of health.
As I go through this scan, this Web site is about to be visited by its 18,000th viewer. With that milestone, I hope to remind everyone that esophageal cancer is among the fastest-growing cancers in the United States and around the world. Primarily affecting men, it now also is crossing the gender gap and striking more and more women.
But there are ways to avoid it. It all centers on seeing a doctor regularly and -- unlike what I did -- tell the doctor if you have persistent heartburn. Further, tell the doc if your persistent heartburn goes away, because that's not normal either. It could indicate an advanced condition known as Barrett's Esophagus, which is a precursor to cancer.
Take your medications as if your life depends on it. If your doctor put you on any of the meds that keep your body from making acid, use it. It could save your life and is a small price to pay to watch your children grow up, celebrate holidays or enjoy a spring afternoon.
So, going to the CT scan Tuesday is just a small inconvenience, and hopefully it will confirm to my doctors that they did an outstanding job in 2007 and 2008 keeping me alive.
Monday, March 30, 2009
Monday, March 23, 2009
New news about esophageal cancer
In recent weeks, there have been a few developments in the fight against cancer of the esophagus.
Esophageal cancer in general is among the fastest growing forms of the disease. And a study by the National Institute on Alcohol Abuse and Alcoholism, first reported in The New York Times, indicates even a small amount of alcohol -- a glass of wine or half bottle of beer -- could increase the chance of developing squamous cell esophageal cancer. This is even more so if the patient is of Asian ancestry.
Squamous cell cancer is most often at the upper end of the esophagus, while the type of cancer I had, adenocarcinoma, generally affects the lower end of the esophagus near the stomach. Squamous cell carcinoma also can be caused by smoking, or in combination with drinking.
Here's a link to the New York Times article.
Esophageal cancer in general is among the fastest growing forms of the disease. And a study by the National Institute on Alcohol Abuse and Alcoholism, first reported in The New York Times, indicates even a small amount of alcohol -- a glass of wine or half bottle of beer -- could increase the chance of developing squamous cell esophageal cancer. This is even more so if the patient is of Asian ancestry.
Squamous cell cancer is most often at the upper end of the esophagus, while the type of cancer I had, adenocarcinoma, generally affects the lower end of the esophagus near the stomach. Squamous cell carcinoma also can be caused by smoking, or in combination with drinking.
Here's a link to the New York Times article.
The other development was the death earlier this month of the actor Ron Silver. Silver had been in a two-year battle with esophageal cancer. He died Sunday, March 15.
His death opened my eyes to the fact that even though I feel pretty good now, I'm not out of the woods 18 months after my initial diagnosis.
I'll continue to update on a more regular basis.
I'll continue to update on a more regular basis.
Thursday, February 12, 2009
A year ago this date ...
Exactly a year ago this date, I returned to work after nearly five months of cancer treatments, surgery and recovery.
It was too long to be away but necessary. Oddly, before my bout with cancer, I was a relatively -- if not overweight -- person, hardly ever availing myself of sick days, let alone using up my annual allotment.
So last year, my return was the start of my work week, Tuesday, Feb. 12, 2008. Everyone in the newsroom welcomed me back, and while I was a little slower than I'd been I got right back into it.
We had a couple of parties at work, with cakes, fruit and other desserts over two days to celebrate my return.
My friends at work truly were that during my absence and return. While away they visited, wrote, sent plants and flowers, food and warmth. They visited me in the hospital, at home, constructed a scrap book to cheer me up (which it did, immensely) and in many other ways made me feel good. When I walked back into the newsroom I was greeted by two rounds of applause. I was at a loss for words, which, my friends will recall, doesn't happen often.
Since then, I've gone off my pain pills entirely, gained back about a dozen pounds and seem to be doing well at work.
Some friends have left the paper and a few others have come aboard. Change, hopefully with health, seems to be the norm nowadays.
It was too long to be away but necessary. Oddly, before my bout with cancer, I was a relatively -- if not overweight -- person, hardly ever availing myself of sick days, let alone using up my annual allotment.
So last year, my return was the start of my work week, Tuesday, Feb. 12, 2008. Everyone in the newsroom welcomed me back, and while I was a little slower than I'd been I got right back into it.
We had a couple of parties at work, with cakes, fruit and other desserts over two days to celebrate my return.
My friends at work truly were that during my absence and return. While away they visited, wrote, sent plants and flowers, food and warmth. They visited me in the hospital, at home, constructed a scrap book to cheer me up (which it did, immensely) and in many other ways made me feel good. When I walked back into the newsroom I was greeted by two rounds of applause. I was at a loss for words, which, my friends will recall, doesn't happen often.
Since then, I've gone off my pain pills entirely, gained back about a dozen pounds and seem to be doing well at work.
Some friends have left the paper and a few others have come aboard. Change, hopefully with health, seems to be the norm nowadays.
Monday, January 26, 2009
Records come, records go
Earlier today, the 17,000th visitor to my blogs, CancerVivor.blogspot.com and kohnzone.blogspot.com, stopped by for a few.
They were greeted by either photos of a really cute newborn named Emily (kohnzone) or some less than cute images of the inner workings of my body (CancerVivor).
At the former, I was announcing the birth of my first grandchild and showing off some photos. That's pretty self-explanatory, so I'll focus on the cancer site.
There, as I have since it launched, I am trying to educate as many people as possible about esophageal cancer and how to avoid it.
So I'll rehash some things I've said in the past:
First, YES! You can get cancer from heartburn. It's not all that difficult, apparently. I did it. Just eat spicy foods -- lots of them -- mixed with greasy, unhealthy items. For a long time. That will set you in the right direction. To follow up, avoid seeing a doc about heartburn or taking meds to treat it. Then, when the heartburn fades away suddenly, think of it as a blessing that your self-medication has helped, not the condition know as Barrett's Esophagus which masks a pre-cancerous condition. If any of these symptoms occur, longtime heartburn or sudden discontinuation of heartburn for no real reason, see a doctor.
Second, esophageal cancer survival is so low because it often is diagnosed in advanced stages. For me, the tumor was large enough to block much of my swallowing, but not all. So if you find it difficult to get food from your mouth to your stomach, see a doctor. The sooner the better.
Third, statistically, esophageal cancer is growing, both nationwide and in Florida. It continues to be very lethal, as noted above. Of the 1,170 Floridians to come down with the disease, 1,010 people died in the American Cancer Society's most recent statistical report. The numbers were grim nationwide as well in 2008: 16,470 new cases and 14,280 deaths.
There's a five-year survivability rate of 34 percent for those with the cancer contained to the esophagus, as mine was, so I'm not nearly out of the woods yet. For all stages of the cancer, the survivability rate plunges to 16 percent.
When diagnosed, I was staged at 2 to 3, meaning it was advanced but had not yet spread to the lymphatic system. That's what saved my life -- so far.
Across the country, esophageal cancer is the seventh-leading form of cancer among men, claiming 11,250 lives -- or 4 percent of all male cancer deaths.
So please, please, if any of this sounds like you, get help. Get it now. Do not wait. I'm not a doctor but I can speak from experience and, sadly, this is an area in which I have experience. Be cautions and take a proactive stance.
It could save your life.
They were greeted by either photos of a really cute newborn named Emily (kohnzone) or some less than cute images of the inner workings of my body (CancerVivor).
At the former, I was announcing the birth of my first grandchild and showing off some photos. That's pretty self-explanatory, so I'll focus on the cancer site.
There, as I have since it launched, I am trying to educate as many people as possible about esophageal cancer and how to avoid it.
So I'll rehash some things I've said in the past:
First, YES! You can get cancer from heartburn. It's not all that difficult, apparently. I did it. Just eat spicy foods -- lots of them -- mixed with greasy, unhealthy items. For a long time. That will set you in the right direction. To follow up, avoid seeing a doc about heartburn or taking meds to treat it. Then, when the heartburn fades away suddenly, think of it as a blessing that your self-medication has helped, not the condition know as Barrett's Esophagus which masks a pre-cancerous condition. If any of these symptoms occur, longtime heartburn or sudden discontinuation of heartburn for no real reason, see a doctor.
Second, esophageal cancer survival is so low because it often is diagnosed in advanced stages. For me, the tumor was large enough to block much of my swallowing, but not all. So if you find it difficult to get food from your mouth to your stomach, see a doctor. The sooner the better.
Third, statistically, esophageal cancer is growing, both nationwide and in Florida. It continues to be very lethal, as noted above. Of the 1,170 Floridians to come down with the disease, 1,010 people died in the American Cancer Society's most recent statistical report. The numbers were grim nationwide as well in 2008: 16,470 new cases and 14,280 deaths.
There's a five-year survivability rate of 34 percent for those with the cancer contained to the esophagus, as mine was, so I'm not nearly out of the woods yet. For all stages of the cancer, the survivability rate plunges to 16 percent.
When diagnosed, I was staged at 2 to 3, meaning it was advanced but had not yet spread to the lymphatic system. That's what saved my life -- so far.
Across the country, esophageal cancer is the seventh-leading form of cancer among men, claiming 11,250 lives -- or 4 percent of all male cancer deaths.
So please, please, if any of this sounds like you, get help. Get it now. Do not wait. I'm not a doctor but I can speak from experience and, sadly, this is an area in which I have experience. Be cautions and take a proactive stance.
It could save your life.
Friday, January 23, 2009
Ah, food
I had a gyro and fries this afternoon, my first solid food in a couple of days. A better 3 p.m. breakfast was not had by me in recent years.
It was at the Daybreak Diner on Curry Ford Road, and it was a tossup between the gyro or their special sloppy joe.
But why have breakfast at 3 in the afternoon? The answer is simple. That was the quickest we could get there from Florida Hospital after my endoscopic procedure.
Dr. Philip Styne conducted the endoscopy and had to inject Botox into my pylorus to get the valve at the base of the stomach to better regulate food flowing into the small intestines.
This is why I have had various forms of chicken soup and Jell-O for the past two days.
And it's why I was dying to have food this afternoon.
In short, the good news is the procedure worked. The bad news is I had to drink my meals for a couple of days.
Below is a look at what the good doctor saw when he went digging into my insides. The numbers correspond to descriptions at the bottom.
Now can you pass the ketchup?
1) Surgical site; 2) Pylorus; 3) Small Intestines; 4) Pylorus; 5) Surgical site; 6) Surgical siteThursday, January 22, 2009
Souper duper
If we lived in ancient Rome, I'd be very wealthy.
That's because I'm on day two of a "clear liquid diet" that will lead to yet another endoscopic exam on Friday.
But let me explain. The exam will likely involve either dilation of a stricture in my reshaped, remade, bionic esophagus or an injection of Botox into my pyloric valve at the base of my stomach. All this to help me process and digest food just a little better than I'm doing now.
So since Wednesday I've been dining on Jell-o and soup. That way by the time Dr. Philip S
tyne peers into my insides the path will be clear of gunk and leftovers and other nasty-looking contents. He'll be able to navigate and treat whatever it is that's been keeping me bloated for a month or so.
tyne peers into my insides the path will be clear of gunk and leftovers and other nasty-looking contents. He'll be able to navigate and treat whatever it is that's been keeping me bloated for a month or so.Dr. Styne, the best of the best of the best in his business, will perform his magic at Florida Hospital's main campus. I'll have some happy juice and snooze a few minutes and then go home. The procedure is scheduled for the afternoon, but I have to arrive at noon. Daughter Karen is my ticket there and home, since I won't be able to drive afterwards.
Oh, and as for the wealth remark above? Ancient Romans viewed salt as a measure of wealth, and, for a time, it was used as currency. With the amount of soup I've consumed yesterday and expect to consume today, trust me: Lots of salt.
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